I haven't posted as much as I had hoped, but trying to get back into the swing of things has proven even more difficult this time around....maybe it has something to do with the fact that this time we have a child already at home and can't just sleep whenever we want...or at all for that matter. Zoya was up throwing up last night about every hour and I haven't been feeling so hot myself. I haven't even unpacked from the first trip yet and I'm going to have to start packing for round number 2 very soon. My house looks like a tornado came through. I've done about 400 loads of laundry though! And snuggled Zoya quite a bit! I am not yet feeling like myself after returning (who is myself anyways at this point?) I think at this point I'm delirious. I'm weary. I'm run down. I need prayers for energy, strength, and peace. I am human. I am nothing without God. I'm trying to regain my peace about everything. It's been a long road friends, from losing Laina to facing the reality that Mila's life is so fragile. Trying not to let my mind go there.
I've been emailing doctors trying to coordinate Mila's medical care upon her entrance to the US. We are working with a couple FABULOUS doctors in Pittsburgh who have spent a lot of their own time trying to figure out what will be best for Mila and coordinating multiple appointments. After having the records translated we have learned that Mila is already in heart failure (being somewhat controlled by 3 medications at this point). We didn't know this. We also learned she spent half of her 7 months of life in intensive care from a severe case of pneumonia. Yah remember how they said she's never had pneumonia? Hmmm. We've learned the possibility of some other health conditions as well. We've learned that she will definitely need immediate medical care upon returning home. We are hoping to arrive home approximately Saturday, November 19th. The doctors have arranged back to back appointments for Mila on Tuesday. If upon landing she seems to be in distress, or was in any distress during the flights we will obviously take her right away to be admitted. The one good thing we found out is that a couple of the cardiologists said that Mila likely would not benefit from oxygen on the plane and actually that the slightly lower oxygen concentration at the high altitude may actually be helpful for her to decrease the extra blood flow to her lungs.
I am thrilled that I will have a travel buddy for the second trip. It's no secret I wasn't excited about going alone and bringing home a medically fragile baby with nobody to bounce my stresses of or keep me calm. And it's really no secret Shawn was worried sick about us but there was no way for him to return for the second trip. God had it figured out already. When we were in the Philly airport waiting to catch our last flight home, we ran into a friend of ours who was returning from a mission trip to Havana. We shared our first trip with him and told him about Mila's medical needs. Mike is a recently retired firefighter who just happens to have nothing going on next week! Seriously?! He and his wife both said they felt this was the right thing to do. I mean how many of you know someone who would just drop life here for a week (or more maybe) and offer to go to Eastern Europe to help us get home!? We are truly blessed! Praising God for this!
Thanks for your continued thoughts and prayers. Please pray your hearts out for our sweet jelly bean!
I've been emailing doctors trying to coordinate Mila's medical care upon her entrance to the US. We are working with a couple FABULOUS doctors in Pittsburgh who have spent a lot of their own time trying to figure out what will be best for Mila and coordinating multiple appointments. After having the records translated we have learned that Mila is already in heart failure (being somewhat controlled by 3 medications at this point). We didn't know this. We also learned she spent half of her 7 months of life in intensive care from a severe case of pneumonia. Yah remember how they said she's never had pneumonia? Hmmm. We've learned the possibility of some other health conditions as well. We've learned that she will definitely need immediate medical care upon returning home. We are hoping to arrive home approximately Saturday, November 19th. The doctors have arranged back to back appointments for Mila on Tuesday. If upon landing she seems to be in distress, or was in any distress during the flights we will obviously take her right away to be admitted. The one good thing we found out is that a couple of the cardiologists said that Mila likely would not benefit from oxygen on the plane and actually that the slightly lower oxygen concentration at the high altitude may actually be helpful for her to decrease the extra blood flow to her lungs.
I am thrilled that I will have a travel buddy for the second trip. It's no secret I wasn't excited about going alone and bringing home a medically fragile baby with nobody to bounce my stresses of or keep me calm. And it's really no secret Shawn was worried sick about us but there was no way for him to return for the second trip. God had it figured out already. When we were in the Philly airport waiting to catch our last flight home, we ran into a friend of ours who was returning from a mission trip to Havana. We shared our first trip with him and told him about Mila's medical needs. Mike is a recently retired firefighter who just happens to have nothing going on next week! Seriously?! He and his wife both said they felt this was the right thing to do. I mean how many of you know someone who would just drop life here for a week (or more maybe) and offer to go to Eastern Europe to help us get home!? We are truly blessed! Praising God for this!
Thanks for your continued thoughts and prayers. Please pray your hearts out for our sweet jelly bean!
Praying, praying, praying!!!
ReplyDeleteHugs,
Nancy
Praying that God will give you rest and rejuvenate you for the return trip. Praying HIs protection over sweet Mila. Praying for safe travels. He will provide for you just as He has provided Mike (praying for him too!) to travel with you. Praying for the wisdom and discernment for the doctors that will care for her stateside. Praying, praying, praying! :-)
ReplyDelete-Beth in Atlanta
Praying for you and Zoya to feel better soon.
ReplyDeleteYep you got that right, big high five to Mike and his wife! I'm so happy you will have a travel companion back to pick up Mila. Definitely that was no coincidence that you just happen to run into him in the Philly airport of all places, God was and is watching out for you now and forever.
Praying for Mila that she has a good trip home with you that doesn't require her being admitted to the hospital asap!
I know God will keep an eye on Mila until she lands in the US and you will know EXACTLY what to do when you get there and take no risks with her! I'm praying for you and for Zoya to feel better. A sick child is no fun but I can't imagine how tired you are and being up all night can't be fun. BUT God waited until you got home for her to get sick so she could have her mommy there :) I can't wait till you bring your baby girl home, God Bless Doctors!!!
ReplyDeleteSweet Sarah, God WILL carry you!!! He has your little Jelly Bean's life in HIS hands and he has brought you this far to give her a forever family to love and care for her. He won't leave you to do this alone. The journey is hard but the reward will be priceless!! I have Mila's smiling face as my desktop background, her picture is on my fridge, and another is in my prayer journal. I am constantly reminded to pray for all of you. In just a couple of weeks she will be on her way home with you. And thank you Mike, for your precious gift to Sarah and Shawn!! ((((BIG BIG HUGS))))!!!
ReplyDeleteAnne B.
Prayers for Mila...and you....and for safe travels...and good health....pretty much anything and everything!
ReplyDeleteThinking of you, friend. It is so hard to be in the limbo that you are in and then to feel bad, pooey. Feel better, give Zoya a smooch from us, and know we are already praying for your jelly bean.
ReplyDeleteMy sweet friend, I am sorry to hear that you and Zoya are ill. I am praying for you and all your specific requests. I am so thankful that you have someone willing to travel with you to your second trip!! YAY someone to take pictures of Gotcha day ;)
ReplyDeleteSweet little Mila girl :-( I'm so sorry about those hard news about her heart :-( You are in my thoughts and prayers. I just can't wait until you are home with her and in hospital, receiving the help she needs for her heart!
ReplyDeleteLove you and GOD has already put the people in placed to lay their healing touch upon Mila. Speak it believe it, keep acting and evil will disappear. All our love to you and your precious whole family.
ReplyDeleteI will of course be praying for you! But might they have stated that Mila never had pneunomia to you because they might have thought that if they´d have told you she was so fragile you might not have adopted her?
ReplyDeleteI am not saying that what they did was right but I believe their intentions were good. My guess is that they so much wanted her to be adopted that they "fabricated"/"extended"/"hid" the truth so that she´d have a family and not languish away in an orphanage.
They definitely knew that she´d have a much better shot at a good treatment in America and flourish there so they took it. The way they want about it was not right (obviously) but their intentions were good.
And I a praying all the way here in Scandinavia :) It´s a bit eerie (pun intended) how much Mila looks like my friend´s son but a testament of how uch alike children all over the world are.
WOW....when I hear of people like your friends who are now going with you to help bring Mila home...I say, "WOW", THAT my dear friends is what God wants us to be doing. THAT is what the church needs to be doing...if the church was doing more of what He wanted us to do, then there would be so many less orphans....when God when will we figure it out. Oh Sarah, I know you are weary and tired...it took me a VERY GOOD week to get my body back on track....I was exhausted, but yet I could not sleep...delerious and yet, my kids needed me, I had been gone and they were ready for their mommy and daddy to be home. I will be praying that your body can get some rest and for Mila's health. What is her heart diagnosis besides being in heart failure....Ellis Anne is a heart baby, so I have a special place for heart babies too...she had a severe heart condition, but God got her and us through it.....it was not fun, but now we are stronger!!! That's what I would like to think anyway...praying.
ReplyDeletestephanie
I'm so glad you have someone to travel with you on your second trip. I hope that helps to ease some of your worries!
ReplyDeleteI have total goosebumps over the Mike story - talk about a God moment. An angel right where you need one. Many prayers!
ReplyDeleteI will definitely continue praying for your sweet little jelly bean, that she stays stable during the trip home and can have at least a little time at home with her family before having to deal with medical stuff. But, like another person said, I KNOW God will give you the wisdom and strength you need to do what is best! I am so thankful to Mike (even tho I don't know any of you in person lol) for being willing to heed the Lord's call and travel with you. You sound sooo weary, Sarah (and understandably so!) and I'm praying that you and Zoya are feeling better and am confident that God will be your strength through this! I too am glad sweet Zoya had her mommy and daddy there with her while she wasn't feeling good. I will continue to pray for her and Shawn as well!
ReplyDelete