Mila is doing worse again. She had a bad evening and night, and we just knew once again something wasn't right. We went to our down syndrome clinic appointment today and the doctor suggested having her admitted to the hospital tomorrow after her echo cardiogram if she continues to do worse and does not start eating. She is not eating more than 1 ounce every 4 hours or so. She's sleeping a lot. He was concerned she might be having cardiac issues because her liver was palpable and down. This is certainly what we were fearing but really hoping not to hear. He thought we'd wait and see through tonight and hope one more dose of antibiotics will help the UTI and then tomorrow we'd get her all checked out cardio-wise as planned.
So on the way home we came up with a plan of action for tomorrow. Then we went for a follow up with her ped about her UTI, etc. She has a multi-drug resistant ecoli urinary tract infection that is only found in hospitals. She said she has never seen it in this area before. Way to be unique Mila. The drug she is on should be working, but she continues to have a fever and seem to be in a lot of pain. They cannot give her an antibiotic injection because anything that comes as an injectible does not work on this strain. There are some IV forms that they may be able to use. The ped this afternoon was more concerned with her rapid breathing, which had started since coming home from the DS clinic just an hour before, paired with her liver not quite feeling right...she said those are not good signs in cardiac kids and we should probably just drive to Pittsburgh tonight and have her admitted :( We are hoping and praying big time her heart is okay. I just don't think we can go there again!
Please Please Please pray for us! We are frustrated for Mila and worried sick. Hoping she will find relief soon. It's just not fair for her! Trying to hold back the tears :(
We are packing to head out for our 2 hour drive and waiting on a call from the doctor to see if we need to go through the ER or if we will just be admitted.