Tuesday, December 20, 2011

A piece of good news :)

We finally got our first real good news today! The doctors want to hear a "leak" from around the vent tube (which would mean the swelling is going down) and Mila has her leak! One step forward to taking her off the ventilator (as long as she doesn't throw another kink into that plan). This is the first time I've ever been excited for a leak! LOL! They are slowly weaning the nitric oxide throughout today and tonight and also lowering the vent settings so please pray she tolerates that! They are still keeping her fully sedated and paralyzed.
I also forgot to mention that since surgery, for the first time ever, Mila has pink fingers and toes.....a good healthy pink we've never seen before. And her hands, feet, and legs are the same temperature as the rest of her body...nice and snuggly warm!
Today she has been much more comfortable and they finally figured out how to sedate her best. Apparently kids with down syndrome are sometimes difficult to figure out as far as getting a comfortable sedation going on. I think it's just Mila's fiesty attitude keeping them on their toes :) I keep telling the nurses she is going to be a big drama queen once they take her off the vent! I don't think they fully understand just how much of a drama queen our girl can be....but soon enough she will show them!
Thanks for all the prayers....please keep them coming! Our jelly bean is a fighter!

13 comments:

  1. Go sweet Mila girl gooooo!!!
    Sunnie in NC

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  2. Go Jelly Bean! Keep on fighting!

    Oh boy they have no idea what they are in for, she will be bossing everyone around. :)

    Prayers for you all.....

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  3. So glad for good news!! And that the drs have figured how where Mila's sedation needs to be. Claire wasn't sedated for too long, but it was crazy, she would go from sleeping and comfy, to struggling and fighting instantly. Hard to see!

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  4. Hooray for Mila! Praying for all of you. That beautiful little jelly bean knows how to fight when she needs to. She is remarkable. Hang in there!

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  5. Prayers said!
    And about what you wrote earlier: I can only imagine how tough this is for you, but don't feel bad about "letting" Mila go through surgery. You are probably saving her life! I am so grateful surgeries like this are doable.

    So great to hear her circulation is already better. I can't wait until January, when the worst is all behind, and Mila will heal and grow so fast, you won't be able to blog to keep it up! ;)
    //Anna H in Sweden

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  6. oh how we LOVELOVELOVE the GOOD news, even it is "only" a piece.....!!!
    we keep wrapping you ALL up in PRAYERS!!!
    May GOD give you STRENGTH, HOPE and CONFIDENCE in HIM for now and what will come!!!
    May HIS PEACE reign your HEARTS, every step of this tough journey!!!

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  7. HOORAY for pink fingers and toes!

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  8. God knows! Mila is a wondrous work of art and she is ready to show the whole world just what a treasure she is. I am praying for you all!

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  9. So happy for the good news. I'm sending up prayers throughout the day that Miss Mila now has smooth sailing on this recovery. She is so strong and determined, you'll need to remind yourself what a good thing that is when she is 3 and making her wishes known! God bless you and your little peanut. So happy for pink fingers and toes :)

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  10. Hi Sarah, thanks for the update. Kallen was on the ventilator for 3 days (if I remember correctly) I keep praying for all of you. Just see each day as another recovery day, even when all things doesn't go as planned! I'm glad to hear that Mila s color is now healthy!!

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  11. Way to go Mila! Show them how tough you are little one! I am so glad you guys got some good news. I know you will be able to update with more soon too. :)
    By the way, thank you so much for taking the time to update us so regularly. I know I am checking in here quite a few times throughout the day and I bet others are too. We appreciate you keeping our hearts on your mind.

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  12. Thanks for the good news!! That little Mila is a toughie! She has 2 role models in you and Shawn...Still praying...

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  13. Yay Mila....so happy to hear this news. She has been on my mind and in my prayers for the last few days. Your Christmas miracle!!

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