We finally got our first real good news today! The doctors want to hear a "leak" from around the vent tube (which would mean the swelling is going down) and Mila has her leak! One step forward to taking her off the ventilator (as long as she doesn't throw another kink into that plan). This is the first time I've ever been excited for a leak! LOL! They are slowly weaning the nitric oxide throughout today and tonight and also lowering the vent settings so please pray she tolerates that! They are still keeping her fully sedated and paralyzed.
I also forgot to mention that since surgery, for the first time ever, Mila has pink fingers and toes.....a good healthy pink we've never seen before. And her hands, feet, and legs are the same temperature as the rest of her body...nice and snuggly warm!
Today she has been much more comfortable and they finally figured out how to sedate her best. Apparently kids with down syndrome are sometimes difficult to figure out as far as getting a comfortable sedation going on. I think it's just Mila's fiesty attitude keeping them on their toes :) I keep telling the nurses she is going to be a big drama queen once they take her off the vent! I don't think they fully understand just how much of a drama queen our girl can be....but soon enough she will show them!
Thanks for all the prayers....please keep them coming! Our jelly bean is a fighter!