Mila has been admitted to the cardiac unit. She has a ton of fluid build up around her heart...i already forgot the name of the condition....it sometimes occurs after open heart surgery amd its caused by inflamation of her heart sac. This can make kids feel really crummy like a bad flu bug. She has a partially collapsed lung due to the fluid which explains the breathing issues. The urine culture was clear meaning the meds she is on are working! We are still waiting on blood work to rule out other infections anf make sure the ecoli hasnt travelled to other parts of her body. They will increase her lasix and start her on toritol in hopes of decreasing the inflamation and draining the fluid. Please pray she will be responsive to the meds. They will do a repeat echo in the morning and if the fluid isn't decreasing they will have to do a surgical procedure to manually drain it and we want to avoid that at all costs. Thank you for your continued prayers. Oh how we love this little girl. She is such a fighter and after all the crying tonite she gave me a half smile. I can't wait to see her feeling better.....any day now!!!!!!
Poor baby girl. She has been through so much. Praying this finally gives her some peace and she can rest and get better.
ReplyDeleteKatrina
Carlene's soon to be momma :)
www.operationorphannomore.blogspot.com
Prayers for you sweet Mila!!!!
ReplyDeleteSo glad you know what is going on! Continuing to pray for her speedy recovery.
ReplyDeleteSarah, thanks for updating us. What a long night you have had. I pray Mila responds well and gets some relief. Hang in there, momma. Hang in there Papa. You have all journeyed so far. Prayers are flowing your way.
ReplyDeleteJane
You & your family are in my thoughts & prayers. Get well little Mila. Great news that the antibiotics are working on her UTI. One less thing to worry about. Thanks for the updates on your precious little girl.
ReplyDeletePraying for Mila that she gets better super fast, and prayers for you, Shaun and Zoya too.
ReplyDeletePraying for you Mila!
ReplyDeleteOh poor Mila, I think the doctors released her too soon after the surgery. My boy had a drainage (or how is it called) for 4 days to get the fluid out.
ReplyDeleteBut now when everything is under control, she will be fine and recovery soon! Best wishes!
I cannot tell you how much admiration I have for you and your husband as I read your posts. Despite all of this heartache and bad news that you have gotten, the love you have for your daughters, and particularly right now for Mila, is so inspirational, especiaolly for me as a new mom. I think I have shared this sentiment before, but I definitely think it bears repeating right now. I just love your upbeat attitude throughout all of this! You exemplify strength, and its something that a lot of people can learn from. Continued prayers to you and your family. You certainly deserve some good news, which I have complete faith that you will soon receive:) Take care.
ReplyDeleteSarah, even though I'm far from Pittsburgh , my thoughts and prayers are with you and little jelly bean. First thing I did this morning was checking your blog to see if there were any updates. You have already gone through the worst part which was bringing her and an open heart surgery; these are the last post surgery complications and very soon you'll have a healthy smiling jelly bean at home. Keep on praying. Big hug :-)
ReplyDeleteHI Shawn and Sarah,
ReplyDeleteWe are praying for Mila. I emailed Shawn about this before, but I live about 20 min from CHP in the North Hills. You guys or Zoya or anyone are welcome here anytime for showers, food, anything. Please call or text if you need anything. I can also run down there with supplies. My cell is (412) 352-5815 and my home is (412) 364-3084. Sending prayers your way!
Katie Conley
Thankful for quick action at this point! Always remember that your instincts are so spot on and even though it's sometimes hard to even think about another medical crisis, admission, and care, you know when your Jelly Bean isn't quite as she should be. Continued prayers for God's grace in all of this, that it would be just another little bump in the road and that in the days to come you will see all smiles from your sweetie!!! I know so many of us wish we were close by to do whatever it takes to lift you up but our prayers will suffice! (((HUGS)))!!
ReplyDeletePraying for precious Mila(and you/Shawn)and relieved to hear you know exactly what is going on with her. God has big plans for that little fighter. I'm sure the half smile was her way of saying, "I got this." Hang in there!
ReplyDeletePericardial effusion is the name you're looking for, I think,
ReplyDeletewill pray that it gets absorbed by itself if possible, and that her lung inflates without a chest tube. We are, of course, continuing to pray for her sweet, strong mama, too. my medical advice... please, please can you make sure YOUR nutrition is as good as it could possibly be? the demands on your body have been so overwhelming the past few months....