Friday Morning Update-ish

She has earned a new nickname...."crazy legs"
We're just hanging out waiting to talk to the team about our jelly bean. She slept through most of the night and woke up happy. She is taking her bottles well and even had some rice cereal this morning. Her lungs sound much better today! She had her echo about an hour ago and the tech said it looked great :) But we are waiting for the official word. We do know for sure it is an improvement from yesterday and think that it showed very little to no fluid around her heart! She has been soaking diapers all morning so hopefully that means the fluid is all on its way out! She looks much less puffy today, just about back to her normal look. I will have to post pictures of how puffy she was at it's worst. (I didn't realize how bad it was until I looked back at pictures). This morning the doctor asked Shawn if we felt comfortable going home today IF her echo was clear and she was doing better. I am a little nervous, just because of what happened last time we were discharged, but they did assure us that we would have an echo next week and that once the fluid is gone it is unlikely to come back. I asked them if we could just borrow the echo machine to take home with us ;) She has now had 11 echos done...and I think I get an honorary echo technician certificate LOL.

Here is a video of Mila...check out her focused, determined look when she is concentrating! She is a smart cookie and figuring out cause and effect!
video

P.S. Thank you to "a friend" for our angel of hope (love it!!!) and the flower for the girls!!! The message was so uplifting, thank you!

Comments

  1. Wow!! What a difference from yesterday!! So happy to see sweet Mila happy and active....the miracles just keep coming...

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  2. Wow! When that girl turns a corner she really turns it! That is amazing that you may be going home today! I know you guys will be happy to get back to your own beds.

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  3. Yay!!! great update!!!

    Love the video! Little smarty pants!

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  4. She is such a sweet pea!! SO relieved to hear she is doing so much better! Hugs to all of you.

    Your PA neighbor,

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  5. Love her :) thank GOD she is doing better..keeping the prayers coming for you guys!! xx

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  6. Good job Mila is right!!! I LOVE LOVE LOVE that God showed up in such a big way yesterday when we could all read the desperation of your post! He is/was always right on time! He is so good!!! And now Jelly Bean is showing off!!! Hope you guys get sprung and that you are confident that you will recognize any signs of "trouble". Although there isn't going to be ANY MORE!!!! ((((HUGS))))!!!

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  7. she looks like a different girl comparing to those taken before any surgry

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  8. Ask the docs about daily weights so that you can look for unexpected fluid retention. I don't know what quantity of weight gain you would use for her size, but this is one of the tools we use for adults with cardiac problems.

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