Praising God!

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Look at this happy girl!!!!! Mila drank another 4 ounce bottle!!!! I've never been so happy as I was today to just hold her and watch her gulp down that baba!  She is starting to seem like herself again. I'm almost afraid to type this....but I think we're turning the corner here! About 30 minutes after they took the drain out she really perked up. Maybe it was causing a greater amount of pain than we gave credit to. We knew it was very uncomfortable, but they think maybe it was causing some referred belly pain too. They gave her an extra dose of lasix so hopefully that will help with the extra fluid in her lungs. We are also praying that tomorrow's ECHO shows no signs of fluid around the heart as it did this morning. I seriously cannot believe how she changed so drastically from this morning!! Even her breathing is improving, but not where we want it yet. She is laughing and smiling and just seems so happy! She's also fighting sleep which makes me think she's feeling a bit better too! My heart sooo needed to see her like this after such a rough morning! They still are unsure what caused the fluid build up (other than her recent open heart surgery) and are hoping for a clear chest xray and echo tomorrow morning...that would be another miracle. Please keep praying, your prayers are being heard!

Comments

  1. How I love to see her smile and hear her voice! I had to do the Mila neck stretch to see it, but it was worth it!! Hoping you both have a good night....Love and hugs to all, Liz

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  2. Thank God!
    I'm still crying, now happy tears as Mila looks so much better. I guess tears are expected here,lol
    still praying!!

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  3. So completely precious!! God is good!! I don't know who sounds happier....Mila or Momma!!! Thank you so much for sharing this little video with us! I think we needed it ALMOST as much as you did! :)

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  4. Definitely praising God!! Big internet Hugs sent your way.
    Hope this is the sign for the end of this crazy roller coaster.
    Thinking and praying for you guys.
    Kim B.

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  5. I just spent over 2 hours reading your family's story. I seen all the updates and prayer requests for Mila but today I actually read each and every post since you traveled to get Mila. I just wanted you to know you are an inspiration and I will pray for Mila and Zoya and even "Elaina" Soon you will be out of the woods with Mila. Hang in there!!!

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  6. I am so glad that you have such a positive update to post! I really hope all goes well tonight and I'm saying a prayer that the Echo in the morning shows no fluid and that Mila is on the mend! I hope they can give you an answer though about the fluid buildup. Not knowing what is causing it is kinda unnerving. That's the Mama in me talking there- I always want to know the why even if my kiddo is better. :)

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  7. What a joyful video to watch! We will continue to pray for Mila's health and healing.
    Mary H.
    Atlanta,GA

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  8. Hi Sarah ~ Once a Nurse, always a Nurse! And, I hope my thoughts are not too intrusive!! I just want to try and shed a little light on "what" might be happening with Mila, along with the obvious fluid issues. I worked as a Pediatric nurse for many years and I took care of way too many really sick children. There are memories that will never leave me, both good and bad. One of the things that I noticed was that infants and children were grossly under-treated for pain. I saw babies given ONLY tylenol after major surgeries. I was known for pushing for better pain control for my patients and was told by several docs that "They don't remember the pain later." When I saw kids not receiving the same pain management that an adult would most certainly receive, I felt crazy with anger! So then I would push the parents to demand appropriate pain medications for their child. That did work when they were insistent. Yep, they might be called the "over bearing" parents, but what is more important, your child's pain control or being called demanding?
    On my 31st birthday, I experienced this when my 2 month old nephew had major surgery and it became personal! I watched my poor sister sob, as she walked her screaming infant, who was only being given tylenol. That was when I decided that I HAD to advocate for him. I spoke to his nurse, who told me that that was the only thing ordered for pain. So, I insisted on speaking to his physician, who by this time had left the hospital for the day. I insisted that she call him at home and I spoke to him. I insisted that had an adult had the same surgery, they most certainly would be receiving narcotic pain meds. He agreed. And, he finally agreed that he could not argue with my logic. Well, my Spencer got his pain medications and finally began to settle down...after screaming in pain for 6 hours.
    Now, I have had the unfortunate event of having chest tubes, like Mila. And, I have been through LOTS of painful procedures, including an amputation of my leg and a radical double mastectomy and I can honestly say that the chest tubes were by far the most pain I have ever experienced in my life! And, when they "pulled" them, which means remove, like they did to Mila today, I was given a large dose of morphine prior to having them pulled. Why? Because, that hurts worse than the tube itself! You saw and experienced it yourself. And, I'm guessing that sweet Mila did not get any pain meds in her IV before hand. It is just not fair! I can believe that she is much happier and calm after they removed it. I also am thinking that "some" of her rapid breathing is/was from the severe pain she is/was in. And, she is likely to still be feeling a fair amount of pain. She cannot tell you or Daddy, so watch her like a hawk (like you aren't already, huh?!!) and if she appears to be struggling, request some stronger medication for her. I know I have left a similar message, but my heart is shouting "Tell her!" and I need to follow that voice. To me, it is the voice of God.
    I Pray that both you & Mila can get some good rest tonight. Request a different nurse if you have to and ask that they only come in when they absolutely have to. A good nurse will respect that. Again, I hope I haven't crossed boundaries with you. Every word comes from a heart that has pure love for Mila and your family! I will continue to pray, Sweet Friend! With Love ~ Jo

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  9. So glad she's doing better! LOVE that giggle!

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  10. That is so heart-melting:)

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  11. Way to go jelly bean!! Small but mighty you are! I'll keep praying and you keep up the good work!

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  12. I am sooo wishing I'd seen these posts earlier b/c I'd have added my prayers to the others. But I will certainly pray for Mila's healing and comfort even more so now as she's dealing with this hospital admission and the problems that brought her there. Also praying for you, Shawn and sweet Zoya... I can almost HEAR your exhaustion and concern in your posts. Please try to take care of you guys too! Precious Mila needs her mama and daddy strong and feeling well and rested, as does Zoya. Hopefully, sweet jelly bean has turned a corner and will begin feeling better and eating/sleeping more regularly. I pray for God's healing hand to be upon her... Hugs and prayers, Lori

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  13. we PRAY for more MIRACLES!!!!
    we ask you, dear LORD, for COMPLETE HEALING for MILA and COMFORT and STRENGTH for the BASILES!!!
    PLEASE hear us!!!

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